For the International Fanconi Anemia Registry, please see our Rockefeller University website: IFAR

NEW FANCONI ANEMIA STUDY AT

THE ROCKEFELLER UNIVERSITY

Detection of Pre-malignant Changes in Fanconi Anemia Mucosa -
A Research Study at The Rockefeller University

•       Where & When? The study is held at the Rockefeller University Hospital (RUH) and is now open for recruitment. It includes a single visit. We can also travel to you.

•       Who? The study includes Fanconi Anemia (FA) patients age 12 years and above.

•       Why? The study aims to identify changes in the mouth before they develop into cancer using a noninvasive brush. This may help us in future screening.

•       What? The study includes oral examination, camera documentation,
oral brushing of six normal-appearing sites, as well as lesions, a blood draw
in a few patients also a skin biopsy (only in adult patients who had a bone marrow transplantation).

•       Our study differs from the NIH FA screening study and complements it

You can take part in both studies!

–      Our study is a research study and not a clinical study

–      We collect genetic information from normal areas in the mouth and lesions

•       Compensation is provided to participants

For more information contact us:

Dr. Tamar Berger (tberger@rockefeller.edu)
Dr. Agata Smogorzewska (asmogorzewska@rockefeller.edu)
Yu-Chien Lin (ylin@rockefeller.edu)